{"id":4976,"date":"2023-04-06T20:12:20","date_gmt":"2023-04-06T18:12:20","guid":{"rendered":"https:\/\/spwyzne.lapszenizne.pl\/?p=4976"},"modified":"2023-04-06T20:12:20","modified_gmt":"2023-04-06T18:12:20","slug":"uratuj-kamilke-przed-sma","status":"publish","type":"post","link":"https:\/\/spwyzne.lapszenizne.pl\/?p=4976","title":{"rendered":"Uratuj Kamilk\u0119 przed SMA…"},"content":{"rendered":"

\"\"<\/a>Kamila cierpi na bardzo gro\u017an\u0105 chorob\u0119 SMA (rdzeniowy zanik mi\u0119\u015bni).<\/u><\/u><\/p>\n

Jej rodzina zbiera datki na najdro\u017cszy lek \u015bwiata\u00a0 zolgenSMA, kt\u00f3ry wyceniono na kolosaln\u0105 sum\u0119 ok. 9 mln z\u0142otych (z dodatkowymi kosztami nawet wi\u0119cej).<\/u><\/u><\/p>\n

Lek jest refundowany w Polsce, ale tylko dla dzieci do 6 miesi\u0105ca \u017cycia.<\/u><\/u><\/p>\n

Choroba u Kamilki nie dawa\u0142a wcze\u015bniej wyra\u017anych objaw\u00f3w, st\u0105d zdiagnozowano j\u0105 zbyt p\u00f3\u017ano.<\/u><\/u><\/p>\n

Dzi\u015b dziecko ma ju\u017c prawie dwa i p\u00f3\u0142 roku, ale waga wci\u0105\u017c nie przekroczy\u0142a 13 kg, wi\u0119c dzi\u015b czas na podanie leku odmierza si\u0119 w kilogramach \u2013 pozosta\u0142y 2 kg nadziei.<\/u><\/u><\/p>\n

Dla rodziny liczy si\u0119 ka\u017cdy gest, ka\u017cdy pomys\u0142 na zbi\u00f3rk\u0119 pieni\u0119dzy. Jej liczne formy mo\u017cna obserwowa\u0107 w okolicy przez r\u00f3\u017cne podmioty i prywatnych ludzi.<\/u><\/u><\/p>\n

Mo\u017ce uda si\u0119 zorganizowa\u0107 jak\u0105\u015b form\u0119 pomocy r\u00f3wnie\u017c na Spiszu?<\/u><\/u><\/p>\n

<\/u>\u00a0<\/u><\/p>\n

www.siepomaga.pl\/kamila-sma<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Kamila cierpi na bardzo gro\u017an\u0105 chorob\u0119 SMA (rdzeniowy zanik mi\u0119\u015bni). Jej rodzina zbiera datki na najdro\u017cszy lek \u015bwiata\u00a0 zolgenSMA, kt\u00f3ry wyceniono na kolosaln\u0105 sum\u0119 ok. 9 mln z\u0142otych (z dodatkowymi kosztami nawet wi\u0119cej). Lek jest refundowany w Polsce, ale tylko dla dzieci do 6 miesi\u0105ca \u017cycia.<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"image","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-4976","post","type-post","status-publish","format-image","hentry","category-aktualnosci","post_format-post-format-image"],"yoast_head":"\nUratuj Kamilk\u0119 przed SMA... - Szko\u0142a Podstawowa im. B\u0142ogos\u0142awionego Jana Paw\u0142a II w \u0141apszach Wy\u017cnych<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/spwyzne.lapszenizne.pl\/?p=4976\" \/>\n<meta property=\"og:locale\" content=\"pl_PL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Uratuj Kamilk\u0119 przed SMA... - Szko\u0142a Podstawowa im. B\u0142ogos\u0142awionego Jana Paw\u0142a II w \u0141apszach Wy\u017cnych\" \/>\n<meta property=\"og:description\" content=\"Kamila cierpi na bardzo gro\u017an\u0105 chorob\u0119 SMA (rdzeniowy zanik mi\u0119\u015bni). Jej rodzina zbiera datki na najdro\u017cszy lek \u015bwiata\u00a0 zolgenSMA, kt\u00f3ry wyceniono na kolosaln\u0105 sum\u0119 ok. 9 mln z\u0142otych (z dodatkowymi kosztami nawet wi\u0119cej). Lek jest refundowany w Polsce, ale tylko dla dzieci do 6 miesi\u0105ca \u017cycia.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/spwyzne.lapszenizne.pl\/?p=4976\" \/>\n<meta property=\"og:site_name\" content=\"Szko\u0142a Podstawowa im. 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